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A Time To Dance...

6/17/2014

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Disney Countdown: 90 Days

Before Hope could walk, I bought her a pair of tap shoes.  Like so many other moms with beautiful little girls, I imagined her in a fluffy pink tutu gliding magically across a stage and preforming to the roar of the audience. 

However, after she was diagnosed with Autism - I hid the tap shoes away.  They were too painful to look at.  All the doctors and professionals gave me a very grim outlook for  her future.  I would not allow myself to even consider the possibility of her being able to have the dream of dancing.  My little girl couldn't speak or look at me or tell me if she had a  belly ache...  In my mind, dancing became "labeled" impossible - just like so many other things in her life.

When her therapist suggested this past winter that Hope maybe try a ballet class, I was skeptical - but I trusted her judgment and knew I had to give Hope a chance.  (I am slowly learning that I should never underestimate my children - Autistic or not.) So in January of this year Hope attended her first dance class which was a combination of ballet and tap. 

From the moment the music started, I witnessed her change - it was as though she was awakened to another world - one outside her world of Autism.  The teachers all were amazed at how well she did.  She listened, followed directions and she not only realized that they were other children in class with her - but she watched them!!  These were all things she had never done before.  They all encouraged me to continue, which we have.  The dance school she attends is absolutely amazing and allowed her therapist to attend every class with her.

Now, every Saturday she wears those same tap shoes to dance class. And what once was a painful reminder of everything that she would never be able to do - have now become the symbol of all that she is capable of - there is no stopping her.   

This past weekend, Hope preformed in her first recital.  Something only a year ago I didn't think would ever be  possible.  We all held our breath to see if she would be able to withstand all the sensory elements of the theatre and actually do her little dance on stage with her friends.  When she did, there was not a dry eye among family, friends and dance teachers. 

A door to the world outside of Autism has opened.  And thanks to a superb dance studio - who are so accommodating to us, amazing teachers & therapists, and the Grace of God, she danced through it.  

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We were not allow to film at the theater, but the following is a dress rehearsal at the studio. Hope is the third poodle from the left with the long thin braid.  And yes - she is the one who is leading the others during the middle part.   She repeated the directions that the teacher would say, so the others followed her lead.
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Notebooking For Preschool & Kindergarten?

5/31/2014

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Disney Countdown: 109 Days


After one week of notebooking, I knew that was the way for us to go.  It was amazing to see the spark back in Julia's eyes.  Plus - it was evident at the amount of information she was really learning because she now speaks about  so many things from her readings and research. 


Science is a favorite subject for Julia but I had her bored her to tears with a workbook!  She loves chemistry and we had this book for over a year without even opening it up.  Now she is learning about the periodic table and enjoying it!!!


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Now my thoughts went to Hope.  Is it possible to notebook with her since she is only doing preschool/Kindergarten work?   Would Autism be an obstacle to this kind of learning?

Then I had a moment of epiphany. 

When I was searching for a binder for Julia to use, there were none to be had anywhere in the house.  I found it odd - I knew I had a couple of extra ones from last years Staples sales.  Where could they have gone?

The answer was Hope.  Over the past year, one of her therapists had thought it would be a great idea to have a visual to help her learn language in a very personal way.  So she started to make up different books for Hope.
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There was the answer to where my binders had gone - as well as the answer to whether she could learn through a notebook system.  And the answer was - YES!
The first book that they created is an "all about me" book.  It has some of Hope's "favorites" listed along with her family and friends.
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The next book is themed after Disney's Doc McStuffins - The Big Book of Boo-Boos.

Hope is not yet able to make her wants and needs known to us - that includes telling us what hurts her.  It is a guessing game to say the least trying to figure out what is wrong when I know she doesn't feel well.  So this book is to help her be able to let us know when she doesn't feel good. 

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The next notebook is her cookbook.  Time in the kitchen is invaluable!    We all love to cook in our house and Hope is definitely showing an interest too.  She likes to scramble eggs and make French Toast.   It's great to share such a special time with her.
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The next book is the latest creation - The Big Book of "Why".  Again, Hope can't answer very simple questions yet.  So this book is to help her begin answering "why" questions and introduce the word "because" into her vocabulary.
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So it looks like notebooking is the way to go for us!!!  I'm so excited!  Even in the short amount of time we have been using it, I find it amazing what a positive difference it has brought to our homeschool.
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Trying to Find a routine

11/4/2013

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At the beginning of the school year, I knew I wanted Hope to do a type of "Workbox" system.  But right now, the biggest challenge is to get her to come to the table and work on a task. 

Today she was able to accomplish 2 activities at the table.  I was very happy.
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She did a cut & paste activity.  (I did the cutting part - Hope is working with her OT on scissor skills.)
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Then she worked on handwriting.
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After Hope completed  each activity, she hung them on the refrigerator.   
Then it was time for an art project.  So we headed out to the yard to collect some leaves.
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Once we had our leaves, we returned inside to do a glue activity.  Hope does NOT like to touch glue - she hates the sticky feeling.  So I was happy that she did so nicely on this.

She started with a template of a tree that her therapist drew.
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She added some glue. 
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Then it was time to add the leaves from outside.
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When Hope was done gluing, she wrote her name.
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All done!
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I thought she did a great job. 
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Happy Halloween!

10/31/2013

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WOW - it's been a while!  Our crazy schedules and homeschool drama has made our lives so hectic lately - but I have promised myself that I will update this blog in the next couple of days!  lol 
  
I have to share...  The week before we left for our Disney trip, I entered the Disney Parks Moms Panel search and found out last week that I advanced to round 2. 

Don't know if I will make it any further, but I have to say, it was so exciting to have made it that far!  I actually cried
when I read the e-mail.  (Now you guys know I'm a crazy person!)  

Keeping my fingers crossed for round 3!
  

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Returning to Reality

10/2/2013

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Sadly we have returned from Disney and we are slowly getting back to reality and our daily routines.  

Our trip was incredible and so many amazing things happened.

I promise I will be updating this site over the next week, right now  I am in the process of writing a trip report.  You can read it here:

http://forums.wdwmagic.com/threads/this-is-autism-when-you-add-a-little-pixie-dust.873100/

My name on the site is FigmentForever

The thread is titled:  This is Autism... When you add a little Pixie Dust!

I hope you enjoy it!






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HUGE Milestone Of The Day!

9/9/2013

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If you asked me a year and a half ago if I thought Hope would potty train - I would have probably teared up and said - "I don't know."  Not even the neurologist could say for sure.    This year, she has done so well in most areas  - but it seemed that the "switch" that made her realize "I have to go." wasn't working.  If I didn't bring her to the bathroom, she would just have an accident.  And she didn't care. 

A week or so ago - she amazed me when she actually walked into the bathroom, got herself on the potty seat and went.  Unfortunately , she forgot to pull her pants down.   But that did not stop me from doing a huge HAPPY DANCE!

Well, today you can only imagine my joy when I heard her go into the bathroom all by herself and she remembered everything!  I cried - I think you really have to be a mom of a special needs kid to understand what kind of accomplishment it is. 

It was one of those "WOW - all that hard work paid off!"  kind of moments.  It makes me want to scream out - There's no stopping her!

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"This is autism" - not quite

6/27/2013

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"This Is Autism" - not quite
days to disney

As a rule, I do not watch very much T.V.  - OK it's true, you will catch me watching Dance Moms now and then.  However I did hear about a documentary called, This Is Autism, that was going to air on Discovery Fit & Health Channel and obviously it caught my interest.  So I sat down and watched. 

Please note - the following is my opinion only.

It was the most depressing view on Autism that I have seen.
  Had I had viewed this in the days or weeks after Hope was diagnosed, I think I might still be in bed crying.
The documentary by Louis Theroux followed the lives of three families with Autistic children.  It showed what I believe to be very severe cases of Autism.  Yet, it gave the impression that this is Autism in general.  That is what bothered me the most. 

It never discussed at what age each of the children were diagnosed, what kind of early intervention they received early in life and the extent of their therapy now in relation to their home life.  . 

One boy, who was older was prone to violent outbursts.  When they occurred, he had to be physically restrained by mom or dad, or the school staff.  It showed mom actually lying on top of him until he settled down. She wanted it to be filmed so "the world" could see what the moms of Autistic children go through - again very generalized. 

My heart went out to her.  But at the same time, I wondered, what self regulation strategies  were implemented when this boy was 2 or 3?  In other words, did his early therapists work with him and his family to teach him how to calm down by himself and re-group?  This is something we are focused on with Hope right now.   

I think most of the children in the film attended a
private school for Autism in the state of New Jersey.  They seemed to all be making progress at school, but at home, they seemed not connected with anything.  The parents didn't seem to know how they should fit in. 

Yet again, I see the beauty of homeschooling. I can't imagine putting Hope on a bus in the morning, her spending all day in an artificial atmosphere and then getting off the bus and me expecting her to function in her life at home. How is that possible?  

Most of the parents who were interviewed sounded and appeared "beaten" down.  In one instance, Theroux asked one mother, "Does Autism define you and your family"?  Without hesitation, her answer was emphatically "Yes".     I thought that was really sad.
    
Towards the end of the show, one of the mom's admitted her fear that her son would end up in a residential home.  She said that inevitably, this was to be the outcome for all of "these" children.   
When Hope was diagnosed, I too heard those words from the doctors - "severe" & "profound".  But the fact that all of her therapies - all of the hard work we do, takes place where it matters most, in the environment in which she needs to function everyday, I believe, makes all the difference.

Perhaps Mr. Theroux will do another documentary on Autistic children who are homeschooled.  How curious would that be?  I would have to find some time to sit down and watch that too.
I appreciate the families who made this documentary possible.  I feel their pain because I walk the same journey.  However, I hope that other parents who view this film do not think that this is nessesarily the outcome for their children.  It does not have to be.   I would tell them to read the works of Temple Granden.

For the record, I do not feel that Autism defines me or my husband, or my daughter Julia or even Hope for that matter.  Rather, I believe that it is our family and how we function with the challenges of Autism in our lives that enables us to define a single snapshot of Autism.
 
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Museum Of The Hudson Highlands

6/25/2013

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Most of the field trips we attended this year have focused on Julia.  So when a friend of ours booked a field trip to the Museum of the Hudson Highlands for the wee ones, it was something I was really looking forward to.  The theme was pond life.  

Up until this year, I actually avoided field trips for Hope.  It was just too difficult.   But she has grown so much in the past year, I really wanted to make our debut.

Usually, when we go on a field trip, I rely on the stroller.  However, when we got to the museum, I soon realized that the path we were going on was not very "stroller friendly".  So I decided that we would give it a go without it.  

At first, Hope did fantastic!       
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When we arrived at the pond study area, Hope did not want anything to do with it.
We walked around a little bit and of course - that's when things went array.  Hope wanted to walk further towards an observation deck.  But it was too far away from our group so I told her "no".  And that brought on a meltdown.
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I was blessed that we had a homeschool dad with us who was ready to lead a hand - in this case two arms and some muscles.   He kindly carried my little Hope back for me. 
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After some lunch and a lot of water, we were all able to regroup and had to the playgroup - Grasshopper Grove. A very beautiful and unique type of playgroup.  Needless to say, the kids had a blast! 
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I was hoping the day would have gone better.  But I have to remember the successes of the day.  A year ago I would not have even went on the field trip.  And even if I did, I would not have even contemplated letting Hope out of her stroller.   I know I have to bring Hope back soon.  I think it's so important for her to have another go at it. 
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    About me

    I am a homeschooling mom who lives in New York State and homeschools my 2 daughters.  My oldest is 19 and Dyslexic and my youngest, who is 12,  was diagnosed with profound Autism. 

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